Robbie Satterwhite was diagnosed at birth with Noonan syndrome, a congenital disorder with symptoms including heart defect, short stature, learning problems, abnormal bone growth and impaired blood clotting. Craig residents Heather Hampton and Cammy Winder are leading fundraising efforts to help the Satterwhite family with medical expenses.

Courtesy photo

Robbie Satterwhite was diagnosed at birth with Noonan syndrome, a congenital disorder with symptoms including heart defect, short stature, learning problems, abnormal bone growth and impaired blood clotting. Craig residents Heather Hampton and Cammy Winder are leading fundraising efforts to help the Satterwhite family with medical expenses.

Fundraising efforts underway for Craig infant

Robbie Satterwhite battling Noonan syndrome, could need heart transplant

How to help:

Buy a bracelet: $5 at Tumbleweeds and Lace Salon, 1111 W. Victory Way, or call Heather Hampton at 620-2546.

Buy a tote: Prices vary, contact Cammy Winder at 629-2692 or visit www.mythirtyone.com/62610. Be sure to click on Little Robbie in the event box at checkout.

Donate spare change: Donation jars are located at Vallartas Mexican restaurant, 1111 W. Victory Way, and all three Kum & Go convenience stores in Craig.

Fundraising efforts are underway to assist a Craig infant who is being treated for Noonan syndrome, a congenital disorder that affects one in 2,500 children.

Robbie Satterwhite was diagnosed at birth with the disorder.

Treatment of the illness focuses on controlling symptoms and complications that include heart defect, short stature, learning problems, abnormal bone growth in the chest and ribs, and impaired blood clotting, among others.

Robbie celebrated his first birthday Oct. 22.

Heather Hampton, a Craig resident and friend of the Satterwhite family, said Robbie’s breathing is assisted by a tracheal tube. It’s anticipated he’ll need a heart transplant sometime in the near future, she said.

She said the Satterwhites have relocated to Denver and hope to return to Craig when Robbie does not require as many medical treatments and procedures.

In an effort to help the family with medical expenses, Hampton said she is leading a fundraising effort by selling silicone bracelets.

“Little Robbie’s mom, Natalie, is like a sister to me and I consider Little Robbie as a nephew,” Hampton said. “I want to help in any way possible and I thought this would be a good start.”

The bracelets, which are similar to the ones popularized by cyclist Lance Armstrong, read “Little Robbie” on one side and “Noonan syndrome” on the other.

The bracelets cost $5 and are available at Tumbleweeds and Lace Salon, 1111 W. Victory Way. Bracelets may also be purchased by calling Hampton at 620-2546.

In addition to the bracelet drive, Hampton said she has placed donation jars at Vallartas Mexican restaurant, 1111 W. Victory Way, and all three Kum & Go convenience stores in Craig.

“Every penny helps,” Hampton said. “All of the money raised will go towards Little Robbie’s medical expenses.”

Craig resident Cammy Winder said she has also joined the cause.

Winder is an independent sales consultant for Thirty-One Gifts based in Johnstown, Ohio. The company sells organizational gift totes encompassing a variety of themes that are marketed to working moms.

Winder said she will have a booth set up at the Holiday Craft Show on Nov. 11 and 12 at Centennial Mall.

Winder makes a 25-percent commission on the items she sells and has pledged to donate all of her Holiday Craft Show earnings to the Satterwhites.

Winder said she felt compelled to get involved because her husband is a lifelong friend of Robbie’s father.

“My husband used to play baseball with Big Robbie,” Winder said. “Their families are really close and when I heard about this I thought how important it is to help.

“They’re such a neat family. They’re such cool people that any help I could give them would be awesome.”

Winder said residents interested in buying a gift tote are not limited to the Holiday Craft Show and can make purchases online at www.mythirtyone.com/62610.

Winder said she will also donate her commission earnings to the Satterwhites for online purchases made between now and Nov. 12.

“When you place an order, just be sure to click on Little Robbie’s name in the event box,” Winder said.

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Comments

YouCaring 2 years, 5 months ago

We can help Robbie and his family. Http://YouCaring.com is a free online service which allows families to fundraise for free...We help families like yours raise money everyday for medical and adoption expenses. Please let us know if you'd like us to help in any way. Even if it is just advertising your cause on our site. Brock, CEO@ YouCaring.com

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John Milligan 2 years, 5 months ago

That is a great website there YouCaring....the problem is the link you put up. It is a dead link. You put capitals in the address and that won't work.... go to www.youcaring.com It is a great website and this young man needs a LOT of help. Craig is a great community and will come together to help....I'm sure of it. God Bless You All!

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John Milligan 2 years, 5 months ago

There is also The National Foundation of Transplants which I know alot about and people to call. Contact Kay Horne 1-800-489-3863.. My wife and I are partnered with them also and they are a great help. www.transplants.org

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