Hayden Cindy Mosciaro said her 20-month-old daughter, Ella, would choose a bowl of green beans instead of a bowl of candy if given the option. The Mosciaros call her EllaBeans.
Ella was diagnosed Oct. 9 with focal cortical dysplasia. Mosciaro said Ella has a lesion on her brain, which causes seizures. To help pay for her care, including the cost to drive to treatment in Denver, a soup dinner is scheduled for 5:30 p.m. today at Hayden Congregational Church.
If you go
What: Soup dinner to benefit Ella Mosciaro
When: 5:30 p.m. today
Where: Hayden Congregational Church, 202 E. Jefferson Ave.
Cost: Free, donations accepted at the door
Online: To follow Ella’s care, go here, sign up for a free account and search “EllaBeans.”
How to help
Those who can’t attend the dinner but would like to assist with Ella’s care can donate to an account in her name at First National Bank of the Rockies in Hayden.
Members of the congregation and friends are providing food, and the event is free, but donations will be accepted at the door, Betty Barnes said. Barnes, a friend of the Mosciaros’ and church member, is helping organize the soup dinner.
Barnes said the church saw a need and decided to try to help.
“For so many of us who’ve had people in similar situations, regardless of having insurance, that still doesn’t cover some costs like driving back and forth to Denver,” Barnes said.
Mosciaro said Ella began having seizures about every other week in late July. Since Ella’s diagnosis at The Children’s Hospital in Denver, Mosciaro said Ella has been taking anti-seizure medication. Mosciaro said Ella has had a couple of seizures in the past week, the only time that has happened, but Mosciaro is hopeful they’ll subside as Ella adjusts to the medication.
The medication makes Ella drowsy, but Mosciaro said she’s still the same girl she’s always been.
“She runs and plays and fights with her brother (Sam) and other kids,” Mosciaro said. “We just have to be careful with her like any person or child who suffers from seizures.”
Mosciaro described Ella a “statistic of one.”
“Just because she has this diagnosis and it’s really scary, she won’t necessarily have the symptoms other children have had,” Mosciaro said.
Some of those symptoms include developmental delays, which Mosciaro said they haven’t yet seen in Ella. But focal cortical dysplasia also can lead to seizures that can no longer be controlled by medication and can erase learned tasks. A treatment for that is removing a part of the brain where the seizures originate.
Mosciaro said her family was nowhere near considering that option but would continue to monitor Ella to make sure she continues to learn and develop.
Mosciaro said she’s grateful for the support Ella has received from the Newborn Network and Horizons Specialized Services in Steamboat Springs and the Northwest Colorado Visiting Nurse Association.
She said the support her family has received, including their church soup dinner, is “phenomenal.”
“Not only is this our church family, this is our community,” she said. “I was totally blown away at how this community rallies around each other and lifts everyone up — pays it forward. … We hope to be in a better position and will be able to pay it forward to someone else.”
Barnes said friends and members of the church would bring their favorite soups. And because it’s Ella, Mosciaro said there likely would be green beans at the soup dinner.
Those who can’t attend the dinner but would still like to help can donate to an account in Ella Mosciaro’s name at First National Bank of the Rockies in Hayden.
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